Clifford Vistors

 This week we have been super lucky to have Jeremy's parents and brother, Jensen, visiting from Arizona and New York.  We have kept it pretty low key, but have had a great time visiting, shopping, hanging out and eating (a lot).   We have been spoiled with yummy treats and new back to school clothes.

On Friday, Jeremy and Merrick went to the coast for a church activity so Saturday morning we all went out to meet them.  We started the day a Cannon Beach.  Jensen wanted to see Haystack rock and the famous Goonies location.  It was a cool morning, but not terrible as far as days at the PNW coast go.  After lunch, we connected with Jeremy and Merrick and went to the beach at Manzanita.  The weather warmed up and it was lovely.  Some off us played in the sand and some of us relaxed.  There may have even been a nap.  After Manzanita, we drove down to Tillamook.  We had dinner and then went to the creamery for a tour, some samples, and of course some ice cream.

 Everyone goes home tomorrow and we will be sad to see them go.  School starts on Tuesday though so I guess it's time to get down to business.

Unrelated to the Clifford's visiting,  Carrigan had her Activity Day Girls boating activity this week.  She had a blast and was proud of herself for being one of the bravest on the tube.  Also, this week, the girls had their meet the teacher day.  I neglected to get pictures, but I will make sure to take lots of first day pictures to make up for it. Oh, and Merrick finally got to take off his heart monitor!

Counting Down

 What to say about this week?  After the last few weeks, it has been pretty uneventful.  We are counting down the days until Merrick gets to ditch the heart monitor (1), the days until Jeremy's parents and brother, Jensen, come for a visit (2) and the days until school starts (9).

Carrigan had the most eventful week.  She spent the week in her happy place, at "Fiber Camp" doing all things crafty with her two of her best friends.  She made a pillow, headbands (which Elsie has been loving), countless needle felting projects, jewelry, embroidery, and a mosaic glass project.  It was the best camp she has ever attended and I am sure we will be seeking out camps there for many summers to come.  She also had a girls night and a birthday party.  It was definitely C.C.'s week.

 

After last week's update, I am sure many are curious about Merrick's week.  He is about the same.  He hasn't really had any big episodes, but the irregular beats are just constantly in the background.  He is very excited to get rid of the monitor tomorrow.  I also decided to try and get him in for acupuncture at my dad's college. Hopefully, I can get him in quickly and hopefully it is helpful for him.  Here he is practicing the "dad stance" with his cousin.

Elsie probably had the least eventful week.  She had a playdate and mostly hung out with mom at home.  That was ok with her though. Most of the week when I asked her what she wanted to do that day, she said "play at home".  We did lots of bicycle riding and playing with Barbies.  Late in the week, she did decide that she wanted to go to the arcade.  Merrick was happy to agree to that.

Only one more week of summer vacation, but with the family coming, it should be a great one.

Merrick Health Update

 Welp, I wish I could say I didn't get a chance to blog last week because we were on a fun trip for Jeremy and my anniversary (we celebrated 18 years last Saturday).  Unfortunately, the truth is that last Sunday I didn't get a chance to write the blog because I was in the hospital with Merrick.

The week before last he spent the week at church camp and had a great time, but apparently he started having a situation on Tuesday were he felt like his heart was racing non-stop.  That continued throughout the week.  He never told anyone, except a couple other campers.

When he got home on Saturday morning, he mentioned briefly that he felt like his heart was beating fast, but he didn't give me the backstory and Jeremy and I were on our way out the door for an anniversary date.  When we got home, he again mentioned that his heart was beating fast.  This time I took the time to ask some follow-up questions.  When he really explained the situation to us, we were concerned enough that we decided to go to Urgent Care.

At Urgent Care, they discovered that he had a "regularly irregular" heartbeat.  Every third beat on his EKG was irregular (a PVC).  The doctor was concerned and wanted him to be seen by a pediatric cardiologist, but at that point, thought the situation was not serious enough that if we went to the ER that they would bring in a cardiologist on the weekend.  He told us if things got worse though, we should go to the pediatric ER.

Sunday morning, Merrick woke up worse.  The irregular beats still continued, but he also felt like someone was sitting on his chest.  He walked from the couch to the table and sat for a few minutes before saying that he felted completely "gassed".  We decided it was time for the ER.

Merrick and I spent the next 30 hours at Doernbecher Children's Hospital.  We started in the ER and then we eventually were admitted.  Over the course of our time there, they did EKGs, a chest X-ray, an echocardiogram, all the blood and urine tests they could think to do,  and a nasal swab to check for Covid or any other respiratory virus. Everything came back normal except for these consistent PVCs.  To make things even stranger, while conducting a stress test, they discovered that as his heartrate increased, the PVCs became less frequent and once his heartrate crossed 130, they stopped completely.  As soon as his heartrate came back down, however, the PVC's returned.  Everyone, and I mean everyone, was stumped.  They ultimately admitted Merrick for observation as there were no more tests to run but they also didn't feel like they should send us home.

Monday, after visiting with all the cardiologist again, including the pediatric electrophysiological cardiologist, they decided to send Merrick home with a heart monitor.  They have given up on trying to find the cause of these PVCs (which he is still having just as many of) and now were are trying to determine the percentage on abnormal beats overtime and in real life to determine what, if any, intervention is needed.  If his abnormal beat load is between 10-20% they will most likely just continue to monitor him.  If his load is greater than 20% they will have to intervene.  Mostly likely that would mean putting him on Beta Blockers, to control the PVCs.  Right now Merrick, in theory, has no physical restrictions, however, if they have to start Beta Blockers, it will put an artificial ceiling on his heartrate and he will most likely not be able to play sports.  Those of you reading this know just how crushing that would be for Merrick.  We are very actively fasting and praying that that will not be the case.  There is no identifiable reason why he is having this problem, so there is no reason why it couldn't simply go away?

At this point, we are midway through our monitor time.  A week from tomorrow we will take off the monitor and mail it in to be read.  On September 5th, his birthday, we will once again meet with the pediatric electrophysiological cardiologist and decide on what the future will look like.  We really need that visit to be positive.  If you are so inclined, we could really use your prayers that the load will decrease and there will not be any need for intervention.